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Oct 13, 2006

"It's not only children who grow. Parents do too. As much as we watch to see what our children do with their lives, they are watching us to see what we do with ours. I can't tell my children to reach for the sun. All I can do is reach for it, myself." --Joyce Maynard

A Father's Remarkable Quest For A Cure

John and Aileen Crowley had three beautiful children, a new house, and great jobs. Then doctors diagnosed their two youngest children with Pompe disease, and overnight everything changed. But Crowley refused to accept this death sentence -- and in the absence of other options, made his own. Determined to find scientists who could develop a replacement enzyme that would keep the disease at bay and his children alive, Crowley quit his job as a financial consultant, invested himself and his life savings in a biotechnology start-up company and raised 100 milllion dollars to find, "The Cure". In her new book by that title, Wall Street Journal reporter Geeta Anand weaves together the Crowleys' remarkable story -- where cutting-edge science meets business acumen, daring and the indomitable fighting spirit of a family that refuses to give in.